It can often feel like a lonely world when you have a rare condition but we are pleased to say there is a lot of support out there from organisations and others with similar conditions.
Eye conditions, including eye-related conditions:
Age related macular degeneration
Albinism albinism.org.uk and www.albinism.org
Micro and Anophthalmia
Punctate Inner Choroidopathy
If there are any organisations which have been of help to you, please let us know and we will add them to our list of contacts.